We also met with Early Intervention today and she said Kaelyn looked AWESOME! She has made progress in just two weeks since we met with her the first time. We're working on strengthening her neck muscles, so tummy time. She doesn't absolutely love it, but she's a great sport. We're also working on getting her to follow things with her eyes. She is sleeping really well, she'll eat her bottle at 10:00 pm and then sleep till 6:00 when I wake her up to feed her. I give her 2:00 am feeding via gavage. That way I don't wake her up and she can get her much needed rest.
As far as her heart goes, she's doing really well. Her oxygen needs have not gone up at all and she's even on less oxygen at home than she was in the hospital. We will be back to the cardiologist in a few weeks. They want her to be at least 12 pounds before they do her surgery, but if she continues to do well they will probably let her get as big as possible....whatever that means. :)
So I have a funny story. A lot of the time when I try to get her to look at me she will look away, and when I try and get in her view she continues to turn away. Its a fun little game I play and it always makes me laugh. So last night I was getting ready to go to bed and Wayne was like, "Ah, get that" as he pointed to something under my feet. The look on his face told me it was a critter, so I totally flipped out and then looked down and saw a big BEE on the floor right between my bare feet. I hopped around like a crazy lady and then finally killed it with my shoe because Wayne was sitting on the floor holding Kaelyn, so I knew I had to do it. So after I got my wits about me I look up and of course she is staring at me with this look on her face that said, "Really mom, really?" In which I replied, "Little Missy, you're not suppose to see me like that...now you know what a sissy I am". Needless to say it was a pretty entertaining night here at the Bonner house.
P.S. There are lots of new pictures on the picasa page. I just have to take pictures of her in all her cute outfits since we don't get to go out and show her off.
Here's what 8 lbs - 6 oz looks like.
Check out our matching bracelets Polly made us...she thought it was something to suck on if you can't tell
Notice anything different? She got to go without oxygen while mom changed her stickers. Her eyes just get bluer every day!
19 comments:
WOW!! This such great news, so happy that Kaelyn is doing so well, you're doing everything right and she thriving at home! She's like a little miracle baby, growing bigger and prettier each day!
So ,so beautiful your feisty one!She is filling out and making strides,finding her way and doing all the amazing things I just knew she would.So proud of her and so proud of you guys.Love from California.
HI I am new to your blog. She looks great. Glad to hear that she is putting on the weight and doing well. Wysdom my son didn't love tummy time until after heart surgery. She is such a cutie and does have beautiful eyes. Glad that she is bottle feeding to, that is great.
She's going to weighing double digits before you know it! And that last picture with the green headband is to die for....sooo cute!
She's going to weighing double digits before you know it! And that last picture with the green headband is to die for....sooo cute! Have you tried the tummy time mats you can get at baby stores? They're fantastic...hope all else is well!
Wow! Way to grow, Kaelyn! Sounds like she's doing really great. I guess there really is no comparing NICU to home, eh?!
Look at that fat baby. Are you going to the halloween party tonight? We'd love to meed that sweet girl. Hope to see you there.
She is chunking right up isn't she, I am so glad. Love the picture of the twinner bracelets, so precious.
That is such great news. She really is a cutie! Lyndie has not even been that good of a sleeper lately (she is 9 months now), but in her defence she is getting 5 teeth all at the same time. We miss you guys.
She is getting so big and SO cute! I love her blue eyes. She is a doll.
I'm your brother in law Travis' friend, and he's talked about Kaelyn nonstop from the beginning! She is so cute, I'm so so happy for you, Wayne, and the whole Bonner family that she's doing well. You're all in my prayers, and I hope one day I get the opportunity to meet all of you. You're an amazing family.
She is so cute. Those eyes of hers... So good to hear she is doing so well. Hugs..
Oh my goodness she IS getting so big! That is wonderful! What gorgeous blue eyes she has too!
She has come such a long way! Those green polka dot pants in your picasa album are the cutest things ever. I think Max was about 13 pounds when he had his OHS.
She is beautiful and looks like all she needed was to be HOME! So glad she is there with you guys. I am sure it perfection! What a long road you have walked already, but as long as it is, it is very blessed! Love the story on an earlier post about Jesus...that is perfect!
Wow, don't come around for a while and boy do things change. EIGHT pounds!!!!! She's going to be bigger than Emmie pretty soon! And those eyes! Goodness she's a doll. So very happy she is doing so well for you. Such a trooper.
just wanted to let you know i have been following your blog as my daughter, Kylee was also born in june. She also has down syndrome, tetralogy of fallot and av canal defect. I hope things go well and glad to see she is gaining weight.
jeanette
She is looking so good--she is filling out! I love the green outfit. Glad to have the updates :)
I am so happy to hear that everything is going so great! It was so good to see you a few weeks ago. I wish that we could get together more often. You are so amazing. Keep up the good work momma!
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