We got transferred to PCMC fairly smoothly yesterday. Kaelyn apparently wasn't too happy about the move. About an hour before they transferred her, her oxygen saturation dropped really low. Her little heart has been working so hard the past few weeks that it just needed a break. Kudos to her for fighting so hard for so long. After what seemed like forever the transport team showed up and then they put Kaelyn on a ventilator and got her on her way. She needed to be on it for the lab anyways, but still, we wish it didn't have to happen the way that it did. It was pretty scary but in the end things are ok.
Well.....no Cath lab today. The cardiology team did another echo on her this morning and decided that they could see what they needed and that the Cath lab wasn't necessay. So, what did they see you might be asking. Well, they saw that her PDA is totally closed and that is most likely what has been causing her increased oxygen needs. What does that mean? It means that she will be having surgery tomorrow afternoon. Some of her blood labs aren't exactly where they want them and they are worried that she might have an infection. If she does, surgery will be on hold until she gets rid of it. If she doesn't, tomorrow is the day. We should know late tonight or early tomorrow morning.
The surgery won't be quite what we expected though. It will be a shunt connecting a vessel from the aorta to the pulmonary artery. This should increase the amount of oxygenated blood that gets sent out to the body. The part that isn't what we expected is that they will open up her chest instead of going through her armpit. That was really scary to hear but we heard it from the actual surgeon and the more we talked with him the better we felt about the procedure. Thank goodness there are doctors that can fix these types of problems. We'll keep you updated.
We'll leave you with some pics tonight as a pre-game celebration. Tomorrow the University of Utah has their first game of the season. We were going to dress her up in her U attire tomorrow but probably won't have time to, so we did the best we can. Enjoy!
Well.....no Cath lab today. The cardiology team did another echo on her this morning and decided that they could see what they needed and that the Cath lab wasn't necessay. So, what did they see you might be asking. Well, they saw that her PDA is totally closed and that is most likely what has been causing her increased oxygen needs. What does that mean? It means that she will be having surgery tomorrow afternoon. Some of her blood labs aren't exactly where they want them and they are worried that she might have an infection. If she does, surgery will be on hold until she gets rid of it. If she doesn't, tomorrow is the day. We should know late tonight or early tomorrow morning.
The surgery won't be quite what we expected though. It will be a shunt connecting a vessel from the aorta to the pulmonary artery. This should increase the amount of oxygenated blood that gets sent out to the body. The part that isn't what we expected is that they will open up her chest instead of going through her armpit. That was really scary to hear but we heard it from the actual surgeon and the more we talked with him the better we felt about the procedure. Thank goodness there are doctors that can fix these types of problems. We'll keep you updated.
We'll leave you with some pics tonight as a pre-game celebration. Tomorrow the University of Utah has their first game of the season. We were going to dress her up in her U attire tomorrow but probably won't have time to, so we did the best we can. Enjoy!
Did you see her red bow?
8 comments:
Ok guys,down on bended knee,we call upon all the prayer warriors we can gather and we will pray you all through this.Kaelyn has done one miraculous job of getting to this day.She has overcome tremendous odds and she has emerged victorious.This will be no different.Her strength and tenacity will come in handy as will that feisty spirit of hers.This is a necessary bump that will mean one step closer to final surgery and although it seems a long way off ... home will be on the horizon.God's grace will carry you through tomorrow and beyond and Kaelyn will take care of the rest.Love to you both.Hold tight to each other and watch Kaelyn she will show you how it's done and show you once again the way.Call on me if you need anything.Promise?
Hey Jeana-
I pray that everything goes well today if she has the surgery- I know how scary surgeries can be- our little girl Hadlee has had over 2 handfuls and every time is scary- good thing we know heavenly father is watching out for our sweet little angels! I read Kaelyn's blog faithfully- she is so sweet and precious and I know you guys have had your hard times! Keep your head up and know you are amazing parents with a sweet bundle!! Hope you are doing good.. oh ya- GO UTES :)
by the way- this is Andy on Amy's blog :)
Praying with all our might for precious Kaelyn today. I love that you got her all ready for the football game.
I hate seeing that girl on the vent since she has avoided it so far, but that just means she is a strong girl. I know it sounds scary to be open heart, but they don't actually cut into the heart, and I don't think they put them on bypass, have they told you? We are coming up this afternoon for an echo, I will stop by the surgery waiting room and see if your in there.
I will praying for little Kaelyn and hope that everything goes well. She is such a fighter! She is getting so big, and so cute!
Praying for your precious little one.
Kaelyn is a miracle and an amazing little girl, sending all our love your way and praying with all our hearts.
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